1st Annual LeDu Golf Outing
To Benefit the Susan Mast ALS Respite Fund
Saturday, May 9 ~ 1:00 PM Shotgun Start ~ Portland Country Club
Deadline to Register is April 10, 2020
Primary Lateral Sclerosis (PLS) and Amyotrophic Lateral Sclerosis (ALS) are both progressive neurological diseases that effect nerve cells in the brain and spinal cord. This limits the body’s communication causing muscle weakness, difficulty speaking and swallowing, and usually results in total paralysis. At this time, there is no known cure. Most patients with ALS live 2-5 years. Typically, PLS has a slower progression. No two cases of PLS or ALS are alike. The progression and symptoms of the diseases vary.
Joe LeDu was diagnosed with PLS in July 2018. The symptoms of his disease began in January of 2017, starting with limited use of his left hand. The disease progressed to the entire left arm, moved to the right arm, and is also impacting his ability to walk and speak.
The Susan Mast ALS Foundation and friends and family have helped tremendously as we as we navigate through an uncertain path forward. Funds raised through this golf outing will directly benefit the Susan Mast ALS Respite Fund, which provides funds to assist caregivers.