Helping people with disabilities live independently

Who We Are

Our History

The Susan Mast ALS Foundation owes its name to Susan L Mast, who passed away in 2014 from ALS. Born on April 21, 1952 in Pueblo, Colorado, Susan spent most of her early years in Hawaii, where she attended Kilauea High School and Chaminade University and graduated from the University of Hawaii with an RN degree. After moving to Michigan in 1966, Susan decided to lead a nursing career supporting dying individuals and their families. Susan’s calling led her to become the Executive Director of Faith Hospice of Holland Home. Today, Susan is remembered as a proud wife, mother, grandmother, dog owner, MSU Spartan fan, and friend.

Our organization got its start when our founder, Ross Mast, decided to honor his wife Susan’s memory by supporting ALS families. Born on February 7, 1946, Ross grew up at the Mast Family Dairy in White Cloud, MI. After graduating from Michigan State University, Ross enlisted in the United States Navy, where he retired from the reserves as a Captain thirty years later. In addition to serving in the military, Ross worked in the packaging engineering industry. In his spare time, Ross enjoyed hosting barbecues, playing golf, spending time with his grandkids, and attending St. Andrews Episcopal Church.

Upon founding the Susan Mast ALS Foundation, Ross asked Julie Snelling to take on the role of Executive Director. Julie, who saw her father pass away from ALS, accepted the position. Before joining the Susan Mast ALS Foundation, Julie graduated from the University of Michigan with a BSN and Loyola University with a MSN & MBA. After working in direct care as a nurse, Julie moved into the business side of medical care at the American Medical Association and later the Michigan chapter of the ALS Association.

At the Susan Mast ALS Foundation, we are so excited to see what the next chapter of our story looks like. As we move forward, though, we do not forget the legacy of those who helped us become who we are today. 

Our mission

The  mission  of  the  Susan  Mast  ALS  Foundation  is to   provide   excellent   support   to   ALS   patients, families  and  caregivers  living  in  West  Michigan. Our  services  focus  on  all  areas  of  need  for  the regional  ALS  community.

Our vision

The vision of the Susan Mast ALS Foundation is to build a strong foundation to ensure all ALS patients and families have the much-needed support, guidance and resource available to them today and years to come.

We strive to strengthen and build our relationships with community partners so we can continue our mission of providing excellent support to ALS patients, families and caregivers in all of West Michigan.

staff

Meet the Susan Mast ALS Foundation team.

Executive Director

Julie Snelling

Julie is the Executive Director of the Susan Mast ALS Foundation. She graduated from the University of Michigan with a nursing degree and received her MBA/MSN from Loyola University in Chicago. Julie has professional and personal experience with ALS.

Before starting at the Susan Mast ALS Foundation, she was the Director of Care Services at the ALS Michigan Chapter.

She left the ALS Michigan Chapter to start a foundation helping families the way she believed they needed to be helped. Julie knows firsthand what ALS families need because her father passed away from ALS on December 26, 2016.

“When everything seems to be going against you, remember the airplane takes off against the wind,
not with it.” – Henry Ford

Bookkeeper

Gale Schultz

Care Services Manager

Andréa Vugteveen

Andréa is passionate about connecting with people, engaging with their stories, and supporting them on their life journeys. She has spent the last 20+ years working in the community and connecting people to resources. She is excited to be a part of the Susan Mast ALS Foundation’s team so she can help support ALS patients, families and caregivers.

Andréa received a BSW from Calvin University and an MA from Calvin Theological Seminary. For the past 9 years, some of her most rewarding work has been supporting West Michigan families who have children with special needs and disabilities through a national peer support program called Sibshops. Sibshops demonstrate how critical support, community and connection to resources are for families navigating chronic diagnoses. She looks forward to supporting Michigan individuals and families impacted by ALS through her role as the Care Services Manager. 

Care Services Manager

Heather Johnson, COTA

Heather is a Certified Occupational Therapy Assistant with 15+ years of experience in subacute and long-term care, and the owner of a private duty home care company dedicated to maintaining function, safety, and independence at home. She holds certifications in Aging in Place and Home Modification, and prides herself on being resourceful, creative, and finding practical solutions that truly improve daily life. 

She is also a proud mom of two collegiate athletes, and shares a busy home with her husband, two dogs, and three cats. When Heather is not working, you’ll find her cooking, gardening, painting or building something. Heather is currently pursuing a master’s degree in organizational psychology, and is excited to be a part of the Susan Mast ALS Foundation family.

Board of Directors

Meet the Susan Mast ALS Foundation Board of Directors.

Chair

Pam Marroquin

​Pamela Marroquin is an experienced finance professional with over 15 years in the corporate finance industry. She holds a Bachelor of Business Administration from the University of Michigan Ross Business School, and a Masters of Business Administration from the University of Chicago Booth School of Business. She began her career in investment banking, helping small to large-cap companies raise debt and equity capital and advising clients on mergers and acquisitions. Pam then transitioned to the corporate side, holding various corporate finance positions from business decision support to leading business development for a division of Thomson Reuters. She acted as the CFO of the Thomson Reuters Corporate Services business unit during its sale process, and then moved with the business when it was purchased by NASDAQ. Pam served as the business unit CFO of the NASDAQ Corporate Solutions business from 2013 – 2016.

Currently she is focusing her time on her family, and lives in Chicago, Illinois with her husband, son and dog.

 

Treasurer

Ken Ferrigno

Ken is a father of two boys and has been married for 25 years. He was born and raised in Connecticut and graduated from Bryan University in 1984 with a BS in Business Administration. Most of Ken’s career was spent in global manufacturing in the Large Format Graphics industry as Senior VP of Sales and Marketing.

Over the past 7 years, he has been the Managing Partner with Hasco Graphics.

 

 

 

 

 

 

 

 

 

 

Member

Tim Koster

Tim Koster is a partner and Chief Growth Officer at BHS Insurance.  Tim has 15 years of experience in commercial insurance, with a focus on serving the construction industry.  After graduating from Western Michigan University with a Bachelors in Business Administration and a Masters in Accountancy, Tim spent four years in Public Accounting and is a Certified Public Accountant (CPA).

 

Tim lives in Rockford with his wife and three children.  After his family started to experience the impact of ALS firsthand he was looking for an opportunity to get involved and provide an impact to the those living with ALS In West Michigan.

Member

Emily Hamner

Emily has worked in the marketing industry for 5+ years and will be joining the SMAF board. She graduated from Ferris State in 2020 with her Bachelor’s in Advertising and received her MBA from Central Michigan University in 2022. After losing her mother to ALS back in 2016, Emily has been involved with our efforts as an intern and advocate. She has a passion for helping others by event planning, fundraising, and raising awareness throughout the community. 

 

 

Member

Kanupriya Chaudhary

Kanupriya Chaudhary is currently the Chief People Officer at Datassential Inc. Kanu has almost 20 years of HR leadership experience across startups, high growth companies and big corporations. She is passionate about building strategies and initiatives focused on solving business and people challenges with empathy. Previously, she built her career working in broad HR roles in the UK, Germany & India. Kanu is an SPHR, Chartered MCIPD and holds an MBA with a major in HR.

Kanu grew up in Delhi, India and was encouraged to help those in need from a young age. She now lives in Chicago with her husband, their son and a puppy.

 

 

Member

Jon Frantz
Jon Frantz is the managing partner of Top to Bottom Cleaning Group where he spends most of his time minus the golf course, while also a multi-business owner in a few other ventures. After Jon graduated from Davenport University in 2012 with a bachelor’s in business management, he spent the next 8 years in the property management industry and real estate investing. He started his journey in startups and existing businesses in 2018 and eventually quit his job in 2021 to pursue his entrepreneurial journey full time. His focus is community outreach and relationship development.
 
Jon lives in Grandville with his girlfriend, son and corgi. In early 2024, after many unknown answers for over 2 years his father was diagnosed with ALS. He is happy to be part of the Susan Mast ALS Foundation to help those impacted by ALS.

Member

Kort St. John

Kort is the Rehab Director with CareLinc Medical with over 30 years of experience working with disabled clients in West Michigan. He is a graduate of Grand Valley State University with a Bachelor’s Degree in Industrial Engineering. He lives in West Michigan with his wife Donna, a professor at Kendall College. They have 3 grown children.

​Through his familiarity with the challenges of ALS, Kort joined the Susan Mast Foundation in 2019 to be able to work more closely assisting those families.

 

Member

Jared Neterer

Jared is a First Officer (Pilot) with United Airlines, based out of Chicago, IL. In 2009, he graduated from Western Michigan University with a Bachelor’s degree in Aviation Flight Science. Jared became familiar with SMAF in 2020 after his dad was diagnosed with ALS. He witnessed first hand the tremendous support provided by SMAF to ALS patients, families and caregivers. After his dad passed away in 2022, Jared and his brother began delivering meals to ALS families on behalf of SMAF and continued fundraising for the foundation. Jared enjoys giving back to the ALS community, knowing that even a little support can make a big difference. As an avid runner, he wears a SMAF hat during every run as a memento to his dad and SMAF. Jared resides in Southwest Michigan with his wife and three children.